Children and adolescents with intellectual and developmental disabilities are at high risk of co-morbid emotional, behavioural, and psychiatric problems that may further reduce their functional abilities. For the clinicians who support them and their families, meeting the needs of children and adolescents with intellectual and developmental disabilities and mental health problems is challenging.
In this book, clinicians who work with young people with intellectual and developmental disabilities and mental health problems will find a comprehensive framework for how their complex developmental, emotional, and behavioural needs might best be addressed. Relevant biological, developmental, family, educational, social, and cultural factors are integrated. The evolution of developmental sequence is seen as vital to understanding the mental health problems of children and adolescents with intellectual and developmental disabilities. This view informs multi-dimensional assessment of behaviour, and addresses conceptual confusion in defining behaviour problems, developmental disorders (including developmental psychiatric disorders such as ADHD and autism spectrum disorders), mental disorders, and serious mental illnesses. Evidence-based interventions to promote skill development and mental health in young people with intellectual and developmental disabilities are described. A model for how interdisciplinary and multi-agency collaboration and co-ordination might be facilitated is outlined. Parents' perspectives are also presented. Fundamentally, though, this is a book by clinicians, for clinicians.
All clinicians and other professionals who work to improve mental health outcomes and quality of life more generally for young people who have intellectual and developmental disabilities - paediatricians, child psychiatrists, psychologists, speech pathologists, occupational therapists, social workers, behaviour clinicians, counsellors, teachers, agency managers, among others – will find the book invaluable.
About the contributors
PART I FOUNDATIONS
Chapter 1 Aiming for a quality of life: What makes for a 'good enough' life for a child or youth with intellectual disability and their family?
Chapter 2 A common language for understanding intellectual disability, development, emotions and behaviour
Teena Caithness and Emma Moore
Chapter 3 Structured assessment of mental health problems in children and adolescents with intellectual disabilities
Louise A Ellis and Stewart L Einfeld
Chapter 4 A paediatrician's approach to the assessment of a child with intellectual disability or autism
Chapter 5 Intellectual disabilities and multicultural issues
Hadia Baassiri and Louisa Carroll
PART II FOCUS ON CARERS AND FAMILIES
Chapter 6 Breaking the news of diagnosis: Facilitating adjustment and acceptance
Chapter 7 Children with developmental disability: Is providing care a burden?
Chapter 8 Promoting parent readiness for change: A motivational interviewing approach
Lesley Whatson and Wendy Grice
Chapter 9 CBT for carers of children with intellectual disability and challenging behaviour: Two cases
Chapter 10 Brothers and sisters with a disability: Rewarding or challenging?
Chapter 11 Understanding and responding to challenging behaviour: Valuable contributions from attachment theory
Chapter 12 Challenging behaviour and change in intellectual disabilities: Family therapy, families and the wider system
Paul Rhodes and Lesley Whatson
Chapter 13 Parents' perspectives
Louisa Carroll, Kate Tye. Karen Ollerenshaw, Yasemin Esri, and Judy Brewer
PART III INTERVENTIONS TO PROMOTE SKILL DEVELOPMENT
Chapter 14 Using a sensory diet to mediate behaviours of concern and to increase children's participation in daily activities
Lucinda Mora and Chris Chapparo
Chapter 15 Communication for life: Promoting communicative competence for mental health and well-being
Chapter 16 Building life skills in children with intellectual disabilities
Chapter 17 Developing emotion-based social skills in children with autism spectrum disorder and intellectual disability
Belinda J Ratcliffe
Chapter 18 Promoting healthy sexual lives for young people with learning difficulties
Cheryl Jones and Jane Chivers
Chapter 19 Transition: More than an event
Debra Corfield and Kate Brierley
PART IV INTERVENTIONS TO PROMOTE MENTAL HEALTH
Chapter 20 Mental illness and intellectual disability: The concepts, the evidence and the clinical skills
Chapter 21 Promoting resolution and safety: A case study example
Lesley Whatson, Debra Corfield and Brett Owens
Chapter 22 Modifications of cognitive behaviour therapy and counselling for individuals with intellectual disabilities
Chapter 23 The regulation of arousal in intellectual disability
Bruce W Chenoweth
Chapter 24 Psychopharmacology: The use of medication to treat challenging behaviour in children and adolescents
Anthony A Zehetner
PART V INTEGRATION OF SERVICE SYSTEMS
Chapter 25 A service model for the mental health needs of children and adolescents with intellectual disability
Chapter 26 A special school community: An inclusive setting for addressing the mental health needs of students with an intellectual disability
Jodie A Caruana, Barbara Fleming, Hebah Saleh, Helen Goltzoff and David Dossetor
Chapter 27 The community clinician and interagency collaboration
Mary Ellen Burke, Meredith A Martin and Garry M Dezilva
About the Editors:
David Dossetor is Area Director of Mental Health at the Children's Hospital at Westmead, Clinical Associate Professor at University of Sydney, and a child psychiatrist.
Donna White is a Speech Pathologist and Senior Clinical Consultant, Statewide Behaviour Intervention Service, Office of the Senior Practitioner, Ageing, Disability and Home Care, Department of Human Services, NSW.
Lesley Whatson is a Special Educator and Team Co-ordinator, Statewide Behaviour Intervention Service, Office of the Senior Practitioner, Ageing, Disability and Home Care, Department of Human Services, NSW.