This book represents a new turn in approaching dementia. It is a manifesto which sets out important principles about the nature of dementia both as a disease and as a disability and explores how a values-based, person-centred and rights-based approach can be applied to every aspect of the experience of dementia. Using vignettes, the book covers a variety of issues such as diagnosis, treatment, care, social attitudes, research, public policy and funding. It reflects the considerations of the patient and their carers as well as the perspectives of healthcare professionals, researchers and policy makers. The Dementia Manifesto promotes the concepts of 'values' and disability rights, as well as the growing focus on creating an environment for people to live well with their condition. It will appeal to a range of clinicians, practitioners, academics and students from a variety of specialties.
Table of Contents
1. Manifestos, dementia and values-based practice
2. Enhancing values-based practice and developing a dementia manifesto
3. The dementia manifesto
4. Rights and values are everywhere in dementia!
5. Reasoning about values
6. Relationships – values and person-centred care
7. Working together
8. Scientifically speaking
9. The science-driven principle and dementia
10. The squeaky wheel principle
11. Communication, end of life, and values
12. Partnerships in decision-making.
About the Authors:
Julian C. Hughes is RICE Professor of Old Age Psychiatry at the University of Bristol. He is a Fellow of the Royal College of Psychiatrists and of the Royal College of Physicians of Edinburgh. Also a philosopher, he is currently a member and Deputy Chair of the Nuffield Council on Bioethics.
Toby Williamson was Head of Later Life at the Mental Health Foundation, a UK social research, service development, policy and public affairs charity. He was responsible for its programme of work on dementia. He also led a national campaign for mental capacity legislation and worked in government on the Mental Capacity Act 2005 implementation programme. He is currently an independent consultant working in health and social care.