This ground-breaking resource demonstrates how genetic knowledge can influence our understanding of a child's behaviour and therefore inform their behavioural support plan. With expert advice and clear instructions, it shows exactly how to go about incorporating syndrome knowledge into ABA practice and start treating children with specific genetic syndromes more effectively. Six different genetic syndromes are covered in detail, ranging from Angelman syndrome to Williams syndrome. The book also includes general sections on genetic intellectual disability syndromes and an explanation of ABA methodology.
This will be an invaluable and enlightening book for ABA practitioners and other professionals supporting people with intellectual disabilities caused by a specific genetic syndrome from age 3 to young adult, providing the missing link between ABA and the role that genetics can play in accurate assessment and intervention.
'Radical behaviorism, the philosophy of science that underpins Applied Behaviour Analysis, is entirely compatible with biological, genetic, and evolutionary approaches. In fact, we need a full understanding of genetics and biology in order to fully understand behavior, i.e., the interaction of the organism with the environment. For the first time in disability research, this book makes these links explicit. It is a must-read for any student of psychology or behaviour analysis.'
-Professor Karola Dillenburger, ClinPsych BCBA-D, Director, Centre for Behaviour Analysis, School of Education, Queen's University Belfast; Treasurer, European Association for Behaviour Analysis
'Although our knowledge about genetic conditions leading to disabilities has increased significantly over the past decades, the field of applied behavior analysis has been slow to integrate this information into its practice. This timely book is unique in that it describes 6 common genetic syndromes and provides a thorough review of syndrome-specific research and extremely helpful advice for practitioners.'
-V. Mark Durand, Ph.D., Professor of Psychology, University of South Florida St. Petersburg and Co-Editor, Journal of Positive Behavior Interventions
'Genetic Syndromes and Applied Behaviour Analysis is a welcome resource for ABA practitioners and other professionals seeking up to date information about genetic syndromes and how they can affect behavior. Taking us beyond simplistic one dimensional views of ABA and genetics, Genetic Syndromes and Applied Behaviour Analysis highlights the importance of the interaction between the unique genetic endowment and the unique environmental learning experiences of every individual. Well organized and clearly written, informative historical summaries and helpful literature reviews of innovative behavioral interventions are found throughout. The invaluable genetic background information is most useful in designing individualized educational plans that increase the likelihood of effectiveness and success. Interventions discussed emphasize positive approaches toward learning new adaptive behaviors rather than simply eliminating unwanted behaviors. I found Genetic Syndromes and Applied Behavior Analysis to be one of the most useful new books to cross my desk in recent years. This book is of great value not just to ABA professionals but to everyone working with these populations and will be at the front of my book shelf. I highly recommend this book.'
- Albert Kearney, clinical psychologist and author of Understanding Applied Behaviour Analysis
'Griffiths and colleagues have produced a book that contains a wealth of relevant background material about a range of genetic syndromes, but more importantly they have translated the implications of this knowledge into practical implications for clinicians. This book will make a positive contribution to practice for professionals working with genetic syndromes who need to know what to do with their knowledge about genotypes and phenotypes, and to behaviour practitioners who want to make a difference to children and adults with disabilities who also have identified genetic syndromes. The value of combining behavioural knowledge and research about genetic syndromes is no longer in doubt.'
-Richard P. Hastings, PhD, CPsychol, FBPsS, FIASSIDD, Professor, CEDAR (Centre for Educational Development Appraisal and Research), University of Warwick
Preface. Dorothy Griffiths, CM, OOnt, PhD, Professor, Child and Youth Studies Department and the Center for Applied Disabilities Studies at Brock University, Ontario. Dedication. 1. An Introduction to Genetic Intellectual Disability Syndromes: Basic Concepts and Applications for Applied Behavior Analysis Professionals. Elliott W. Simon, PhD, Executive Director of Research and Health Services, Elwyn Institute, Pennsylvania, Barbara Haas-Givler, MEd, BCBA, Director of Genetic Services, Elwyn Institute, Pennsylvania and Brenda Finucane, MS, CGC, Genetic Counselor, Associate Director, Autism and Developmental Medicine Institute, Geisinger Health System, Lewisburg, Pennsylvania. 2. Understanding Applied Behaviour Analysis. Rosemary A. Condillac, PhD, CPsych, BCBA-D, Associate Professor and Psychologist, Centre for Applied Disability Studies, Brock University, Ontario and Melissa Legree, MADS, BCBA, Behaviour Analyst, Private Practice, Whitby, Ontario. 3. Fragile X Syndrome: Implications for Applied Behaviour Analysis. Ami Morris, MADS, BCBA, Behavioural Consultant, blueballoon Health Services, Burlington, Ontario, Diana Kondratenko, MADS, Instructor Therapist, Surrey Place Centre, Toronto, Ontario and Dorothy Griffiths, CM, OOnt, PhD, Professor, Child and Youth Studies Department and the Center for Applied Disabilities Studies at Brock University, Ontario. 4. Down Syndrome: Implications for Applied Behaviour Analysis. Keeley White, MA, PhD Student, Applied Child Psychology, McGill University, Quebec, Tracy Billingsley, BA, Bed, MADS, Special Education Teacher, Ottawa, Ontario and Rosemary A. Condillac, PhD, CPsych, BCBA-D, Associate Professor and Psychologist, Centre for Applied Disability Studies, Brock University, Ontario. 5. Smith Magenis Syndrome: Implications for Applied Behaviour Analysis. Anne Brennan, MADS, BCBA, Clinical Lead, Applied Behaviour Analysis Based Services and Supports Program for Children and Youth with Autism, Hastings and Prince Edward Counties, Ontario, Jennifer Tysick, MADS, BCBA, Senior Behaviour Therapist, Surrey Place Centre, Toronto, Ontario, Elliott W. Simon, PhD, Executive Director, Research and Health Services, Elwyn Institute, Pennsylvania and Jeffery Hamelin, MA, PhD, (conferred posthumously), Queen's College, New York. 6. Williams Syndrome: Implications for Applied Behaviour Analysis. Andrew Davis, MADS, Training Institute, Geneva Centre for Autism, Toronto, Ontario, Joanna Cappuccitti, MADS, ABA Coordinator, Simcoe County District School Board, Ontario and Jan Frijters, PhD, Associate Professor, Child and Youth Studies Department, Brock University, Ontario. 7. Angelman Syndrome: Implications for Applied Behaviour Analysis. Jane Summers, PhD, CPsych, Co-Director, Specialized Developmental and Behavioural Services, Developmental Pediatrics and Rehabilitation, McMaster Children's Hospital, Ontario, Milena Kako, HBSc, MADS, Senior Behaviour Therapist, Greater Toronto Area, Ontario and Dayna Taylor-Weir, MADS, BCBA, Behaviour Therapist, Peel Behavioural Services, Trillium Health Partners, Ontario. 8. Prader Willi Syndrome: Implications for Applied Behaviour Analysis. Carina Gratton, MADS, BCBA, Clinical Co-ordinator, McMaster Children's Hospital's ABA Services and Supports Program, Hamilton, Ontario, Tali Amar, MADS, Teacher, York Region District School Board and Shelley L. Watson, PhD, Associate Professor, Psychology Department, Laurentian University, Ontario. 9. Guidelines for Incorporating Syndrome Knowledge into Applied Behaviour Analysis. Kerry Boyd, MD, FRCP(C), Psychiatrist, Assistant Clinical Professor, Psychiatry and Behavioural Neurosciences, McMaster University, Ontario, Chief Clinical Officer, Bethesda Services, Thorold, Ontario, Kristin L. Baker, BMT, MTA, MADS, Behaviour Therapist, Pathstone Mental Health, Niagara Region, Ontario, Emily Moxey, BA, BEd, OCT, MADS, Special Education Teacher, Halton District School Board, Ontario, Dalena Anzivino, MADS, BCBA, Senior Behaviour Therapist, Kerry's Place Autism Services, Ontario, Sylvana Yeung, MADS, Instructor Therapist, Surrey Place Centre, Toronto, Ontario, Julie Krieger, MADS, CBIST, Compliance Officer and Positive Behavior Intervention Specialist, New York State, Faten Matar, MADS, Matar Behavioral Services, Toronto, Ontario, Linda Moroz, BA, BCaBA, Children's Behaviour Therapist, Bethesda Children's Outreach Services, St. Catharines, Ontario and Sarah Ruiter, MA, Support Coordinator, Community Living St. Catharines Association, Ontario. Appendix: Glossary of Terms. Lauren Ireland, Hons BA, completing Masters of Arts, Applied Disability Studies with a concentration on Applied Behaviour Analysis, Brock University, Ontario.
About the Editors:
Dorothy Griffiths, CM, OOnt, PhD, is a Professor in the Child and Youth Studies Department and the Center for Applied Disabilities Studies at Brock University, Ontario. She has co-written and edited seven books and writes and speaks extensively on topics relating to developmental disability. Dorothy is a recipient of numerous teaching, research and advocacy awards, including the Order of Ontario and the Order of Canada.
Rosemary A. Condillac, PhD, CPsych, BCBA-D, is an Associate Professor and Psychologist working at the Centre for Applied Disability Studies at Brock University, Ontario. Over the past 25 years she has worked as a scientist-practitioner in the fields of intellectual disabilities, autism spectrum disorders and applied behaviour analysis in community, educational, and clinical settings.
Melissa Legree, MADS, BCBA, is a Behaviour Analyst working in private practice, Whitby, Ontario. The majority of her 14 years of experience in the field of disability studies and applied behaviour analysis has been as a Behaviour Consultant and ABA Classroom Supervisor at Lake Ridge Community Support Services, Whitby, Ontario and as a Teaching Assistant at the Centre for Applied Disability Studies at Brock University, Ontario.